Friday, May 7, 2010

No grass will grow under his feet!

Michael has been kept very busy with OT and PT. He has been walking the halls, doing strengthening exercises to rebuild thigh and hip muscles and relearning the skills of everyday living.
In 2006, just before Michael's transplant, he was told that while he is on immunosuppresants to switch from bars of soap to liquid soap. The thought behind this was that bar soap can harbor bacteria. After Michael's bone marrow transplant he developed a skin rash which we found out was due to the use of liquid soap. He currently has a skin rash. The doctors said to watch it. I think the rash is due to using liquid soap so I brought in a bar of soap from home for him to use.
Michael has finished his course of steroids and the doctors are now reducing the amount of insulin he is getting. His blood sugar levels have been very good. The hope is that he will be able to stop using insulin and return to oral medication to maintain normal blood sugar levels.
Since there seems to be a difference of opinion about how long a PEG needs to be in before it should be removed, I have called a couple of Gastroenterologists to find out their take on this type of tube feeding. I am awaiting their feedback.

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