When Michael was going through his treatment for Leukemia, I would often mention how "we" were going through chemotherapy/radiation. Obviously, Michael was the one who had the treatment, however the caregiver also "goes along for the ride". I often explain to people that cancer is like being on a roller coaster in the dark. You never know if you are going up or down. If you think you are handling the roller coaster a tidal wave comes along and hits! You just have to hold on.
It is important for the caregiver to eat right (moderation in all things), try to get some sleep and keep a positive attitude. Strain can get to any caregiver, no matter how much support they have. While Michael was critical, I would wake up and not know where I was, in the confusion I would feel my neck to see if I had a Trach!
While on the journey to recovery it is necessary to be as informed as possible. However, being informed isn't enough. A support group is essential! We don't have an extended family in Denver as support. Thank you, Will and Yaakov for coming in as relief. Your support was invaluable.
We are so lucky to live in Denver. The community has become our family. They provide a hand to hold, a shoulder to cry on, and a listening ear. They are encouraged by the improvements and pray for a speedy and complete recovery.
During each hospital stay the social worker or care manager ask if I have a support group. I respond, "I have a wonderful support system". The Denver community has cooked for me, stocked the refrigerator for Passover, provided walking company to and from the hospital, brought food to my house or hospital, kidnapped me for meals (we are taking you now for lunch/dinner), picked me up after Shabbat/Yontif, and started an evening Maj group so I could play. They came to the hospital to keep me company when I wasn't allowed to be with Michael. The doctors in the community offered their expertise. This was invaluable, THANK YOU! The advise I got helped save Michael's life and certainly made him more comfortable.
Every aspect of support was necessary to aide in Michael's recovery. Prayer, is very important and very necessary for recovery. The community prayed for Michael and continues to do so, and this has made all the difference! We are very fortunate that people are praying for Michael all over the United States and in Israel. Friends (and family) have gone to the Kotel and to the Kever of Rabbi Meir Baal Haneis to daven for Michael and I have seen miracles! Thank you all! Keep up the good work!
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